Let’s Catch Up, Shall We?

It’s fair to say that it’s been an awfully heavy month. I have done little else but work, cry, look after mum, try to keep the family sane, stitch & attend bootcamp. I can report that of all those, only work & Mum is the bit where I can consider it a pass.

If you don’t want to read on, you can take a pass here too. Thank you for your kind thoughts & prayers & comments over the last month. They are very much appreciated.

Let’s divide these up into sections:

WORK: I am up-to-date thanks to Jille taking care of one of my in-boxes for a week. I am currently starting at 6am, finishing just after 2, & picking Mase up from school, & into “normal” stuff after. I have run out of leave, as the rest of the adult family didn’t step up (yes, I am a little resentful here). I have another 4-6 weeks of this routine. It’s hard not having a proper lunch break/walk/escape from the office time. One of the buyers is also not speaking to me, the weirdo, as her work crush has been speaking to me! Umm – he has to, we work together?!! I have little patience for child-like, bitchy actions from people in their 50’s! I am treating this like a game & currently we are at day 12. I wonder if this can last until her retirement? Cross fingers!

 

BBM: I tried going to 2-3 of these a week. Unfortunately I’ve re-injured my wrist last Sat at the Strength HQ morning so can’t do half the stuff. I can’t STITCH either! Slowly going insane…cue the CRY. And the migraine, which is completely stress related. The GP yesterday put me onto Rizamelt, which dissolves in the mouth. So I’m more likely to gain a benefit, as the fast-acting migraine the other day left me vomiting.

 

MUM: So the 4 hour hospital appt turned into 5 days. The surgeon taking the lung biopsy cut thru her lung, & so she needed a chest drain. This gave rise to further complications. She doesn’t remember much, as she was pretty out-of-it, but at one point I honestly thought that she was going to die. Lung illnesses are scary stuff. The funniest point was when (high on morphine) she was glaring at one of the nurses, totally convinced the poor woman had kicked a squirrel! Yeah. We don’t have squirrels down here. Not even close.

The upshot is that we don’t yet have a comprehensive diagnosis. This is making Mum giddy, & it took a lot of talking to get her to understand that YES SHE IS STILL SICK and NO YOU CAN NOT GO BACK TO YOUR NORMAL. She likes to bury her head in the sand and ignore what she doesn’t like, which is one reason she got so ill, because she wouldn’t go to the GP until we forced her.

Her ANA tests are sky-high, which indicates an auto-immune disease. Her body is attacking her lungs. Usefully she tested negative for the more common strains, like rheumatoid arthritis etc. Her lung specialist has referred her to the RA clinic, as they deal with the auto-immune complications more than the respiratory clinic, then we go back to respiratory in 3 months time.

In the meantime, she has to eat regularly (at least 3 times a day, one meal fibre cereal & only 2 pc bread a day, which unknown to us was all she was having a lot of the time). Poop every day (instead of once a week). Take vitamins. Walk daily (cue a multitude of complaints). But she has lost 9kg since starting to see the specialist, so that’s good (it took 6 of us to move her in the hospital, as she was in so much pain she couldn’t help us). In another couple of weeks she can go back to the GP & see about clearance to drive & “work” at playgroup & school reading recovery again.

She will have to keep a healthy routine now for the rest of her life, and avoid people with respiratory illnesses themselves. I know this will be super-hard, as she needs to feel useful, but that should be a worry for another day.

If you got to the end of this, thank you! Well done! It was like a mini-marathon to run, & I guess you can tell that my personal stress level is super-high. I’m thinking I should probably take advantage of the work Employee Assistance Programme & the free counselling. Especially as I can’t stab things…

2 thoughts on “Let’s Catch Up, Shall We?

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